The Walk & Roll to Cure FSHD is the only international event focused solely on funding progress for FSHD. Led entirely by dedicated volunteers, supported by staff, events take place all over the US and Canada.

We began the campaign in 2018 with just 5 events and an aggressive $105,000 fundraising goal, which we exceeded. In 2019, we welcomed 1,369 participants to 11 walks across the country and raised more than $420,000. For 2020, we set a goal of raising $625,000 with 17 events, then the COVID19 global pandemic threatened to derail our efforts.

Our amazing volunteer leaders were determined to move ahead by transitioning to a virtual event. Last year we celebrated 24 Virtual Walk & Roll events, more than 825 participants, 162 teams and an amazing $550,000+ raised!!

In 2021, the second year of a pandemic, this community of fierce FSHDers continues to face challenges head on. Determined to show how strong this community is, volunteers across North America - the U.S. and Canada - celebrated 29 successful Walk & Roll events.

Live, in-person events returned in most locations, but we also had virtual events. Teams created pop-up events and celebrations, hosting their own walk-day celebrations; on city rooftops, on neighborhood trails, as backyard luncheons, in conjunction with golf outings… It has been amazing to see the creativity and resiliency come to life!

• 164 Teams

• 4,720 walkers, donors and volunteers were a part of the effort

• $678,000 raised, and counting!

Since the Walk & Roll was officially launched as a nationally branded campaign in 2018 we have raised almost $1.9 million for groundbreaking FSHD research and programs of patient education and support.