We began the campaign in 2018 with just 5 events and an aggressive $105,000 fundraising goal, which we exceeded. In 2019, we welcomed 1,369 participants to 11 walks across the country and raised more than $420,000. For 2020, we set a goal of raising $625,000 with 17 events, then the COVID19 global pandemic threatened to derail our efforts.
Our amazing volunteer leaders were determined to move ahead by transitioning to a virtual event. Last year we celebrated 24 Virtual Walk & Roll events, more than 825 participants, 162 teams and an amazing $550,000+ raised!!
In 2021, the second year of a pandemic, this community of fierce FSHDers continues to face challenges head on. Determined to show how strong this community is, volunteers across North America - the U.S. and Canada - celebrated 29 successful Walk & Roll events.
Live, in-person events returned in most locations, but we also had virtual events. Teams created pop-up events and celebrations, hosting their own walk-day celebrations; on city rooftops, on neighborhood trails, as backyard luncheons, in conjunction with golf outings… It has been amazing to see the creativity and resiliency come to life!
Since the Walk & Roll was officially launched as a nationally branded campaign in 2018 we have raised almost $1.9 million for groundbreaking FSHD research and programs of patient education and support.