2021 Arizona Walk & Roll to Cure FSHD

2021 Arizona Walk & Roll to Cure FSHD supporting FSHD Society
FSHD Society

About 2021 Arizona Walk & Roll to Cure FSHD

The Walk & Roll to Cure FSHD is the only international event focused solely on funding progress for FSHD. Led entirely by dedicated volunteers, supported by staff, events take place all over the US and Canada.

We began the campaign in 2018 with just 5 events and an aggressive $105,000 fundraising goal, which we exceeded. In 2019, we welcomed 1,369 participants to 11 walks across the country and raised more than $420,000. For 2020, we set a goal of raising $625,000 with 17 events, then the COVID19 global pandemic threatened to derail our efforts.

Our amazing volunteer leaders were determined to move ahead by transitioning to a virtual event. Last year we celebrated 24 Virtual Walk & Roll events, more than 825 participants, 162 teams and an amazing $550,000+ raised!!

In 2021, the second year of a pandemic, this community of fierce FSHDers continues to face challenges head on. Determined to show how strong this community is, volunteers across North America - the U.S. and Canada - celebrated 29 successful Walk & Roll events.

Live, in-person events returned in most locations, but we also had virtual events. Teams created pop-up events and celebrations, hosting their own walk-day celebrations; on city rooftops, on neighborhood trails, as backyard luncheons, in conjunction with golf outings… It has been amazing to see the creativity and resiliency come to life!

  • 164 Teams
  • 4,720 walkers, donors and volunteers were a part of the effort
  • $678,000 raised, and counting!

Since the Walk & Roll was officially launched as a nationally branded campaign in 2018 we have raised almost $1.9 million for groundbreaking FSHD research and programs of patient education and support.


Starts at:  September 18, 2021 10:00 AM
Ends at:  September 18, 2021 1:00 PM


Silverlake Park
2420 S. Kino Parkway
Tucson,AZ 85716 USA


Ally Roets

Why Participate?

FSHD affects nearly 1 million men, women and children worldwide, leaving them with the inability to walk, raise their arms, or simply smile. The FSHD Society is the largest network of patients, families, clinicians, researchers and friends - all advocating for FSHD. YOU are the driving force that enables the FSHD Society to support & empower families and to fund groundbreaking research to find treatments and a cure!

How Your Support Makes a Difference

Your support of the FSHD Society will be put to work right away, to push forward the most promising research, help empower patients and families to live stronger, healthier lives, and press the government and major institutions to give FSH muscular dystrophy (FSHD) the funding and attention it deserves. Your support ensures that no patient need ever face this disease alone, and pushes us towards our goal of delivering treatments to our families by the year 2025!

Thank You to our Generous Sponsors!