Having a child in treatment for neuroblastoma is challenging enough; navigating it during a global pandemic is harrowing. Today, families with children in treatment in New York City are facing a special challenge: not only do they have to worry about keeping their kids safe from COVID-19 while simultaneously fighting neuroblastoma, but also a lack of housing options.
The Band of Parents is asking for your help to subsidize housing for these families through at least June 30, 2020. A generous donor has agreed to match every donation, dollar for dollar, beginning April 16, 2020.
We will be reserving a dedicated floor of hotel on the East Side of Manhattan for these families, granting them easy access to their appointments at Memorial Sloan Kettering Cancer Center. The rooms will all have a kitchenette for storing medicine and meal preparation. In addition, we are also working to provide dedicated drivers, and essentials such as hand sanitizer, masks, and toiletries, so that these families have less to worry about and can focus on their child's treatment.
The Band of Parents is a member-based grassroots organization with the goal of funding innovative clinical trials and new therapies for neuroblastoma, a rare and deadly cancer that mostly strikes children. We are also a support network for the newly diagnosed and their families as they go through treatment. Our mission is to fast track a cure through less toxic and targeted therapies. To date, the Band of Parents has committed nearly $10 million to pediatric cancer research. Learn more at www.bandofparents.org.