Walk for EPILEPSY – Greater Philadelphia

My Epilepsy Story 

I am currently 40 years old. I am a twin born at 28 weeks gestation. I had many complications of prematurity. I had my first seizure at 2 years old.  I have had several different types of seizures over the years and have been prescribed several different medications throughout my life. I have gone as long as 10 years without a seizure, only to have them return due to a medication change. My seizures are currently well controlled. As of May 24th, 2012, it was 13 years since my last tonic-clonic seizure, unfortunate until May 31, 2025, I had one without warning/aura.

I am 1 in 26.

I walk for myself and the many friends with epilepsy that I have met through Epilepsy Foundation Eastern Pa.

Now more than ever, the EFEPA needs your help to advocate for epilepsy funding in the upcoming Pennsylvania budget! As you know the EFEPA has had financial struggles and greatly depends on epilepsy funding from the state of Pennsylvania to provide vital programs and services for the epilepsy community. 

#EFEPA #epilepsy #epilepsywarrior #epilepsyawareness #advocacy

Suggested donation amounts:

$26- 1 in 26 will be diagnosed with epilepsy in their lifetime. 

$28-  for how many weeks I was when I was born 

$30- 30% of individuals battling

epilepsy who live with

uncontrolled seizures

because no medication

or surgery will work

for them.

$34 Epilepsy affects an estimated

3.4 million

Americans. 

$40- There are over 40 type of seizures. 

$60- in recognition of the 60% of people where the cause of epilepsy is unknown. 

$65- More than 65 million globally have epilepsy.

$70- About 70% of people with epilepsy have their seizures controlled with medication. 

$108- for how many days I was in the hospital after I was born. 

 

$110- 110,000

residents living with epilepsy in Eastern PA.

$150- Each year, about 150,000 Americans are diagnosed with this central nervous system disorder that causes seizures.

$25 - Provides coaching materials & planners for adults with epilepsy facing

 cognitive challenges

$50 - Fills first aid kit for medical team at the Young Adult Retreat

$100 - Covers cost for monthly support group meetings

$250- Young Adult Retreat for people with epilepsy 18-30.

$575 - Grants a wish for one young camper to attend Camp Achieve for the week.

 $200- Adult Wellness Weekend 30 and up.

Fox29 Bob Kelly visiting Camp Achieve 2023

https://www.fox29.com/video/1265423

Please consider making a contribution to my fundraiser or joining me at the Walk for Epilepsy- Greater Philadelphia by sharing this page with your network. Seizures haven’t stopped, and neither has our fight to END EPILEPSY! Now more than ever, I need your support to make a difference in the lives of those battling epilepsy. 

Together, we can make a difference. Together, we can END EPILEPSY.