Copy of GBS│CIDP Foundation International DIY Fundraising supporting GBS│CIDP Foundation International
GBS│CIDP Foundation International

Why Host a DIY Fundraiser?

If you’re interested in fundraising for the GBS|CIDP Foundation, you most likely believe in our mission to support, educate, research, and advocate. DIY fundraisers, like the one you’re planning, help the foundation support patients around the world, connecting them to a global network of volunteers, health professionals, and researchers that will help their journeys with GBS/CIDP be a little easier. Money also helps educate. GBS and CIDP are rare diseases, meaning many healthcare professionals and care givers often don’t have much experience with them. Our foundation helps educate so that patients are receiving the best care possible. Through funds raised, we also support a program that provides grants to researchers around the world to better understand these diseases. These grants are helping groundbreaking research that will provide quicker diagnosis, new medication, and a better understanding of GBS and CIDP. Lastly, fundraising dollars go towards advocacy. We advocate on the federal, state, and grassroots levels to help benefit our patient and caregiver community.

About the Foundation

The GBS│CIDP Foundation International is working for a future when no one with Guillain-Barre syndrome (GBS), chronic inflammatory demyelinating polyneuropathy (CIDP), and related syndromes such as multifocal motor neuropathy (MMN) suffers alone and that everyone has access to the right diagnosis and the right treatment, right away.

Our commitment is our story. It all began with eight people sitting around a dining room table 30 years ago. Through the hard work and determination of our Founder, Estelle Benson, the Foundation grew larger and has become able to support thousands of patients, family members, friends and caregivers. The Foundation is committed to continuing to provide the experience of care and support so indicative of the original grassroots mission.

Our commitment is to support those touched by GBS | CIDP and variants so that every patient has access to an early and accurate diagnosis, proper treatment, and the opportunity for a full recovery. Learn about our original Founders, Bob and Estelle Benson, and the fascinating historic journey that was once 8 and is now over 30,000 members! Our Leadership, guided by our Board of Directors, is committed to success in all areas of support, education, research and advocacy. The Foundation is extremely fortunate to be associated with the top experts in neurology. This expertise extends to you in many ways, including the Centers of Excellence programs which provide first-class care to GBS-CIDP patients.




Hosting a DIY fundraiser is a fantastic way to raise awareness of GBS│CIDP and variant conditions, such as MMN in your local community! In addition, the funds you raise will go towards our mission of improving the quality of life for individuals and families affected by GBS, CIDP, and related conditions. Our unwavering commitment to the patients we serve is built on four pillars: support, education, research and advocacy.

  • We support patients by nurturing a global network of volunteers, healthcare professionals, researchers and industry partners to provide them with critical, timely, and accurate information;
  • We educate doctors, clinicians, patients and caregivers to increase awareness and understanding;
  • We fund research through grants, establishing fellowships and other appropriate avenues to identify the causes of and discover treatments;
  • We advocate at the federal, state, and grassroots levels to educate policymakers and help them make informed decisions that benefit our patient community.