Nicolas R. Lorusso Memorial supporting Band of Parents
Nicolas R. Lorusso Memorial supporting Band of Parents
About Neuroblastoma and Band of Parents
Neuroblastoma is an aggressive, pediatric cancer, mostly striking children less than 5 years of age and is diagnosed in approximately 700 children each year in the US. It's cause is unknown. Arising in the developing nerves of a child, it often appears as a tumor in the chest or abdomen. Neuroblastoma is difficult to treat, with patients suffering multiple relapses.
Due to the high cost of research and the small number of children diagnosed annually, pediatric cancer is severely underfunded by both the pharmaceutical industry and federal government.
Band of Parents is a grassroots, nonprofit organization and was formed to fund innovative research and clinical trials to help increase the survival rate of this deadly cancer. Band of Parents has funded more than $10 million dollars over the last 13 years to help save lives and continues its mission to fast-track a cure, using less toxic, targeted therapies.
Nicolas was diagnosed in 2016 with a rare childhood cancer called neuroblastoma. After 4 years of surgeries, long cycles of chemotherapy and other treatments, Nicolas passed away on February 4, 2021 at 5 years old. Nicolas fought neuroblastoma like a champ and handled treatment so bravely. This warrior is now running free in heaven and no longer suffering from this horrible disease. Nicolas was a very special, affectionate son and a loving brother to Gianna. He always had a smile on his face no matter the struggle or pain he faced. His contagious laugh, beautiful smile and love will live in everyone's heart forever.
Please donate in memory of Nicolas and to help other children battling neuroblastoma. Together, we are bound by hope that one day, no child will die of this disease.