2026 Perris, CA Energy Walk

My name is Griselda Macario, and I am reaching out to share my story and raise awareness about mitochondrial disease, particularly TK2d, an ultra-rare genetic disorder that deepy impacted my life. I was born in California in 1993. In 2019, I was diagnosed with TK2d. Although there is no cure for this disease, finally understanding the cause of my symptoms was a significant relief. TK2d affects all muscles in the body. I have been gradually losing strength in my arms, legs, neck, and torso, as well as my facial, chest and esophageal muscles. Despite these challenges, I maintain a positive outlook and find ways to adapt to continue enjoying life. The support and love from my husband, daughter, family and friends motivate me to share my journey with TK2d. Today, I continue to face challenges arising from disease progression. My body becomes weaker, however, my hope for the future remains strong. I am hosting this walk to raise awareness about mitochondrial disease. Increasing awareness can help medical professionals look beyond the more common diseases and understand the visible and invisible struggles faced by individuals like me. Funding for further research and support is crucial for the patient community, who fight daily in hopes of treatment, improved care, and a better quality of life.