National PKU Awareness 2020 Challenge

National PKU Awareness 2020 Challenge supporting National PKU Alliance
National PKU Awareness 2020 Challenge

Programs for Adults with PKU

Fundraise and Raise Awareness for Adults with PKU!

NPKUA wants those living with PKU each day to have access to programs such as PKU Pathways and PEER Mentoring programs.  These programs are essential to the emotional, well-being, back-to-care, and overall support of adults with PKU.


Meet one of the mentors, Laura.  As a young adult, she struggled to stay on her PKU diet and take care of herself.  Today, she is healthy an inspiration to others, and is helping adults with PKU (mentees) to push forward in the right direction.


Maternal PKU Mentor Program

Fundraise and Raise Awareness for Women with PKU!

Women with PKU who want to become pregnant and have healthy children need the support of other women who have PKU and experienced a positive outcome.

We want to spread awareness about PKU and inform women with PKU that NPKUA has a program that can help! NPKUA's Maternal PKU Program is a unique program that establishes a mentor-mentee relationship between two women with PKU; one being pregnant or planning to become pregnant and the other having already experienced a successful pregnancy. 

Meet Corinne, a woman with PKU who knew she needed to control her Phe levels during her pregnancy to help avoid the risk of Maternal PKU syndrome.  Through support of a mentor with NPKUA's Maternal Mentor Program, Corinne was better able to control her Phe levels and have the emotional support she needed to get through her pregnancy.  Meet Harper, her healthy, happy baby girl!


December 3, 2020 is 

National PKU Awareness Day

It's time to raise awareness and funds for PKU.  We're putting a spotlight on NPKUA programs that help adults navigate the challenges of living with PKU.  Scroll down to see Laura and Corinne's success stories.  Their experiences will inspire you to take the National PKU Awareness 2020 Challenge! 

It's easy!! Just put on BLUE for PKU to accept the Challenge, then upload your photo OR donate, OR BOTH!! Use #wearblueforPKU2020.  Earn points for completing the challenge, recruiting others to take the challenge, posting on social media using #wearblueforPKU2020, and fundraising. 

Let's see that creativity shine through!  Now through December 31 we want to flood social media with #wearblueforPKU2020.  Share, share, share, and encourage friends and family to share!  The more active you are, the more points you will receive.  The top 3 point leaders will receive a FREE PKU Awareness adult unisex premium t-shirt. 

We would love your support by making a DONATION as well (and you will get additional points).  We challenge YOU to wear BLUE for PKU!

Let's #wearblueforPKU2020!!

ACCEPT THE CHALLENGE!