Jenny Novak Brown

Jenny Novak Brown

On April 27, 2012 Jenny was rushed into the operating room at UCLA Ronald Reagan Hospital for emergency, exploratory surgery. The surgeons were not sure what type of mass was obstructing her bowels, but needed to remove it immediately to prevent intestinal rupture. Within the week, the mass was identified as a malignant tumor of unknown pathology. The tumor was analyzed by the UCLA tumor board as it was quite unusual and eventually diagnosed as Clear Cell Sarcoma, an incredibly rare cancer.

Jenny was extremely fortunate to have an excellent surgical team who removed clear margins and a sarcoma expert, Dr. Arun Singh, as her oncologist. Her first PET scan post-surgery revealed no evidence of disease, the most wonderful news imaginable. At the time, there was no recommended course of chemotherapy so Jenny's treatment plan was to heal from her extensive abdominal surgery and to undergo PET scans and/or MRIs 3-4 times per year. Every scan Jenny has undergone since that day has been clear of disease with no evidence of recurrence.

Ten years have now passed since that fateful day and Jenny has not only survived, she is thriving as a mother, wife, and professional in higher education emergency management. Her daughters Scarlett and Sasha are 2.5 and 9 months old. Receiving a sarcoma diagnosis at 26 years old changed Jenny's life and she is incredibly thankful for the ten wonderful years since the surgery. She created this page to inspire hope in newly diagnosed sarcoma patients and to raise funds to support sarcoma research and education.

Please donate in celebration of this huge survival milestone to support more research and development of better treatments for this incredibly rare form of cancer that afflicts mainly young adults who still have their whole lives ahead of them.

Jenny Novak Brown