2024 Speaker Series

The Foundation is excited to have a conversation with Rebecca Aune (Director of Education Programs) and Hayley Mason (Policy Analyst) from the National Organization for Rare Disorders to answer the question "what is drug development?". Join us for this live webinar as we talk about the process of research and discovery for a potential new treatment option for rare diseases. We'll discuss science, data collection, regulators, and how patients can play a part. 

Who should attend?

All members of the community can benefit from this webinar, but the discussion of regulators may focus more on the US system. This event is FREE, donations are welcome, but not required to attend.