Interested in hosting your own fundraising event for FSHD?

But not sure how to get started? Let us know what you have in mind! 

Share some details and connect with us HERE.

How Your Support Makes a Difference

Your support of the FSHD Society will be put to work right away, to push forward the most promising research, help empower patients and families to live stronger, healthier lives, and press the government and major institutions to give FSH muscular dystrophy (FSHD) the funding and attention it deserves. Your support ensures that no patient need ever face this disease alone, and pushes us towards our goal of delivering treatments to our families by the year 2025!

Who is Team FSHD?

Team FSHD is the grassroots community fundraising program of the FSHD Society. 

For years, Team FSHD members worldwide have been turning their passions and interests into opportunities to raise funds and awareness for FSHD research. 

The funds raised by Team FSHD members support our high-impact research programs to help speed the development of treatments and a cure for FSH muscular dystrophy!

We are a community of dedicated individuals who have become FSHD change-makers in their community. From grandparents to high school students, and everyone in-between, anyone can leverage their time and talent towards funding a cure!

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