Team FSHD supporting FSHD Society
Steve Abelman
On Wednesday, June 8, I will be joining 20 of my friends at Bear Creek Golf Course to raise important funds for the FSHD Society!
Steve Abelman
On Wednesday, June 8, I will be joining 20 of my friends at Bear Creek Golf Course to raise important funds for the FSHD Society!
The money I'm raising with this fundraiser is supporting programs and funding research that will directly impact patients and their families living with FSH Muscular Dystrophy (FSHD).
Facioscapulohumeral muscular dystrophy, or FSHD, is a genetic disorder that leads to the weakening of skeletal muscles. It affects an estimated 1 in 8,000 individuals. It affects everyone differently, but over 70 percent of patients experience debilitating pain and fatigue. There is no effective treatment or cure—but there is hope. I'm committed to making sure that no one faces this disease alone.
Please visit the FSHD Society website (fshdsociety.org) to learn more about FSHD, ways to get involved, and everything that is happening!
Thank you for your support!