Each May, families impacted by Williams syndrome in the US, and around the world gather to celebrate their children, relatives and friends with Williams syndrome, increase awareness of this unique genetic condition and raise the critical funding necessary to provide programs and resources that will create brighter futures.
Our awareness theme this year celebrates one of the unique qualities of those with Williams syndrome - their innate ability to connect with everyone they meet. We think it's special, and definitely worth celebrating!
In 2020, and again this year, our celebrations and fundraising efforts this month will be largely virtual, but no less important. Please join us to make a difference in the lives of the 30,000 people in the United States who are living with Williams syndrome.
When: Throughout the month of May
Since its inception, more than 100,000 people have joined forces each May to help us increase awareness of Williams syndrome, but we are still far from the finish line.
There are still thousands of individuals with WS who are undiagnosed or misdiagnosed, and many of those diagnosed still do not know about the WSA and the resources and support we can provide to families throughout their journey with Williams syndrome
Individuals with WS face life threatening cardiovascular issues and experience developmental and learning challenges - Every Single Day!
With your help to raise awareness of Williams syndrome and increase funding for specialized programs and scholarships and a continuum of resources we can ensure that individuals with Williams syndrome will be able to live healthy and meaningful lives.
WSA Awareness month and our walk fundraisers (virtual and in-person) are the most important annual fundraising events for the WSA. Each year, these events provide more than 70% of the revenue we need to fund our programs and services. Every dollar raised truly makes a difference in our ability to offer life-changing resources.
Funding raised during awareness month supports families directly with support for all of our specialized programs as well as scholarships to camps, convention and post-secondary programs, and travel assistance for families who need special medical intervention and treatments for their children or adults with Williams syndrome.
By joining forces with the WSA and local volunteers, you are enhancing the future for all individuals with Williams syndrome, and can be secure in the knowledge that more than eighty-five cents of every dollar raised goes directly to program support.