Eyeing Progress Summit supporting Curing Retinal Blindness Foundation
Curing Retinal Blindness Foundation

About Eyeing Progress Summit

Empowering Dialogues with All Stakeholders: Real Conversations about Real Progress in Rare Eye Disease Research and Treatments 


This isn't just another event—this is your opportunity to get up close to the pulse of what's happening in research and resources for those living with rare eye diseases. Join us for a virtual experience like no other, where you'll gain exclusive insights and connect with leading experts in the field. 

Are you wondering:

  • Why does research take so long, and what are the challenges?
  • What are the current successes in vision research, and what breakthroughs can we expect in the near future?
  • What do individuals who have lived life with vision loss consider a meaningful outcome of a therapy to restore vision?
  • What are the key elements to thrive with vision loss?

At the Eyeing Progress Summit we will discuss those issues and more! 

Don't miss this opportunity to be part of the conversation and drive progress forward. Register now and be at the forefront of innovation and inspiration in the field of rare eye diseases!


TOPICS and SPEAKERS

New Happenings in Rare Eye Disease Research
SPEAKERS:

Sulagna Bhattacharaya, CEO 

Nanoscope Therapeutics

Birva Shah, OD, Associate Medical Director
Alkeus Pharmaceuticals


Why Does Research Take So Long?
SPEAKER: Kevin Freiert, Salem Oaks Consulting

Meaningful Endpoints/Outcomes - Young Adults' Perspective
SPEAKERS: 
Michael Smedley, LCA-CRB1  
Mitchell Smedley, LCA-CRB1


Date

Starts at:  May 18, 2024 9:00 AM
Ends at:  May 18, 2024 12:00 PM

Location

,

Contact

Kristin Smedley
CuringRetinalBlindness@gmail.com

Why Participate?

Are you tired of searching endlessly for answers about rare eye diseases, only to find yourself more confused and frustrated?

It's time to stop feeling lost in the sea of medical jargon and opaque research. Our free summit for rare eye diseases is your beacon of clarity in the darkness. Imagine finally having your burning questions answered: 

  • Why does research take so long? 
  • What groundbreaking advancements are on the horizon? 
  • Are there others out there who share your feelings of isolation and bewilderment? 
  • What can you realistically expect from treatments? 

This summit is not like the others you may have encountered – no stuffy presentations or inaccessible language here. Think of it as a warm gathering in a living room, where understanding and connection are the main agenda items. Don't miss this opportunity to gain the knowledge and support you've been yearning for. Sign up now and take the first step toward empowerment and enlightenment in your journey with rare eye diseases. 

Why Your Donation Matters

Small Donations = Major Milestones

Since 2011, it has been small donations from people like YOU that have taken CRBF from one Facebook post to create a movement for CRB1 retinal disease, to now impacting the entire rare eye disease field. A few highlights of how seemingly small support has a huge reach:

  • Testified at the FDA to help achieve the first gene therapy approval in the United States.
  • Achieved a National Rare Eye Disease Awareness Day
  • First legislation in US history to be submitted in Braille
  • NIH awarded $1.25 Million to CRB1 research 
There is still much collaborative work to be done and this Summit will propel that work forward - with your help! Donate today!

Thank you for your support!