#FDMatch24 supporting The Familial Dysautonomia Foundation

We hope this finds you and yours well in these difficult times. We are so grateful to have all of you in our lives. Though Sam left us just over two years ago, we feel her spirit every day. Her joyous photo graces the cover of Disability Worlds, Faye's new book written with Rayna Rapp.
https://www.dukeupress.edu/disability-worlds The story of Sam's life is woven throughout the book's pages.
Honoring Sam's memory and mission -- to help make life better for those with FD by supporting the work of our Foundation -- means so much to us as parents, to me as President, and most importantly to the FD community.
Our work has produced significant new treatments -- a way to effectively control autonomic crises at home is almost ready to launch --- as well as wonderful FD Virtual Hangouts hosted by the FD Social Committee along with our virtual FD Mental Health Program. And we are close to FDA approval of next steps for cutting-edge genetic interventions.
Huge thanks to everyone for being part of Sam's Club and if you can, helping this small but mighty cause with donations to the FD Foundation in honor of Sam's memory during our end of year Match campaign #FDMatch24. https://p2p.onecause.com/fdmatch24/faye-ginsburg-and-fred-myers
We know many of you have recently made contributions. We are so deeply appreciative of your generous and thoughtful support!!
Wishing you a happy Chanukah, a merry Christmas, and a restorative New Year.
Faye and Fred