Fight for a Better Life supporting Alagille Syndrome Alliance
Fight for a Better Life
#FIGHTFORALGS
Fight for a Better Life supporting Alagille Syndrome Alliance
About Fight for a Better Life
The ALGSA Fight For A Better Life is the Alagille Syndrome Alliance's largest annual fundraising campaign.
The 'Fight' is a virtual, team-based event held September 1st to October 15th of each year. During this time, ALGSA stakeholders including ALGS families and friends, create teams or individual fundraisers with financial goals in mind. This is done in support of reaching the ALGSA's overall fund-raising goal. Each team or individual fundraiser will reach their goals by having their own in-person events or online fundraising initiatives. This could include pop can drives, shoe drives, restaurant fundraisers, auctions, yard sales, online fundraisiers, or any other event they'd like to include in order to reach their goal.
This campaign funds ALGS programs and the development of opportunities for ALGS families around the world. Programs include the financial assistance program, educational resources, disease awareness, travel scholarships and event participation. Opportunities include connecting families to scientific and research projects, outlets to share their rare disease story, initiatives where they can inject their patient voice, and events they can participate in or even lead.
Create a team or individual fundraiser today. Unite together with ALGS families, friends, and Alliance supporters from around the world together to reach our FIGHT goal! Make a big difference in the lives of those living and dealing with Alagille Syndrome.
Your participation is sure to help us reach the GOAL! Thank you!
Date
Starts at: September 1, 2020 12:00 AM
Ends at: October 31, 2020 10:59 PM
Location
,
Contact
Cher Bork
901-286-8869
alagille@alagille.org
Why Participate?
Choosing to participate in the ALGSA Fight For A Better Life Campaign is a commitment to positively impact the families living and dealing with Alagille Syndrome. The primary purpose of this event is to fund ALGSA programs in science and research, the ALGSA family financial assistance program, the Symposia and Scientific Meetings on ALGS, educational programs, and many more meaningful programs and opportunities rare Alagille families all over the world need and deserve. Join us today by shining a light on the Fight!
Team Spotlight: TEAM SOPHIE
Team Sophie has been the longest running family team for the Alagille Syndrome Alliance 'Fight For A Better Life' campaign, and has raised over $110,000 in the last 10 years. Started in honor of Sophie, a young ALGS patient and family member, team Sophie has gone on to inspire and educate friends, families, and Walmart shoppers in and around Boston, MA. Team Sophie has gone to great lengths to raise awareness and funding for the Alagille Syndrome Alliance. In 2019, Team Sophie was awarded an ALGS Champion Award for their devotion and dedication to supporting the ALGSA. Team leaders for Team Sophie include Re Fernald (Sophie's grandma), Kristine Loomer (Sophie's Aunt), and Andrea DellaCroce (Sophie's mom). Team Sophie's networking and reach have inspired many new teams to join the ALGSA Fight For A Better Life and have lead to corporate support from local businesses including NEWCOM. NEWCOM and owner, Dov Koplovsky were awarded the first ALGSA Friends of the Fight award for their support of Team Sophie's Fight team event. A big thanks to the leaders, family co-leaders, friends, and supporters of Team Sophie! We look forward to another great year!
Shine a Light on the Fight with Custom Shirts and Hoodies!
Our Tshirt/Hoodie sale has ended, but we do have a few extras. Message us at alagille@alagille.org with your request. Thank you for Shining a Light on the Fight!
