The National PKU Alliance (NPKUA) works to improve the lives of individuals with PKU and pursue a cure. Created by local groups who recognize the importance of a national agenda, the NPKUA is a vital voice in the PKU community. We are the first national non-profit organization to unite adults, families, regional and statewide PKU organizations, the medical community, and industry to make a difference in the lives of people with PKU.

The NPKUA is a vital voice for the PKU community. We work towards expanding PKU research and accelerating the timeline for a cure by investing in peer-reviewed and targeted research. We provide education and support for people living with PKU through programs such as For PKU, By PKU Mentor Program. We are the national voice for advocacy at the federal level—at the NIH, FDA and the halls of Congress.

Move Your Pheet for PKU!