For years, Marcia and her husband Dean dealt with doctors who told them Marcia would "just have to live with" her seizures and the side effects of her medication. It wasn't until they learned about EFMN that they found an epileptologist who listened to them and cared about about Marcia's total wellbeing — not just her seizures.
“We finally found someone who cared about the side effects of my medication and wasn’t only focused on my seizure activity. It’s been great having someone who listens and cares about my quality of life."
Since that moment, Marcia and Dean have continued to turn EFMN for support when they need it. In 2020, when the financial assistance that enabled Marcia to afford her primary medication ended, EFMN's Information Services line helped her and Dean to receive full coverage through the manufacturer.
Marcia's journey isn't without its bumps, and she and Dean don't expect it ever will be. But they know they'll get through it together. "One of Marcia's greatest strengths is her ability to pick herself up when things are tough," says Dean.
Whether educating people about treatment options, connecting them to transportation or employment services, or referring them to a care specialist, EFMN's Information Services team ensures people with epilepsy have the support they need to navigate life with seizures.
Led by our Regional Outreach team, EFMN's programs for children and youth (Shining Stars, Camp Oz), social events, and peer connect groups reduce isolation, minimize stigma, and build networks of support that are vital to Managing Epilepsy Well.
Working at the state and local level, EFMN is advocating to remove geographic, financial, and social barriers to care, improve access to vital public health services, and increase safety for people with epilepsy at work, in school, and in the community.