2022 United In Epilepsy Golf Endurance Challenge supporting Epilepsy Foundation of Minnesota
2022 United In Epilepsy Golf Endurance Challenge supporting Epilepsy Foundation of Minnesota
About 2022 United In Epilepsy Golf Endurance Challenge
Show your enduring support for the epilepsy community!
This summer, the Epilepsy Foundation of Minnesota will gather its community of epilepsy (golf) champions to raise support for the programs that empower our family, friends, and neighbors with seizures to lead the lives they want.
From sun-up to sundown on August 29, 2022, 36 golfers will play 1,980 holes of golf (55 holes each) in the Epilepsy Foundation of Minnesota's first-ever United In Epilepsy Golf Endurance Challenge. Over one day at TPC Twin Cities, Minnesota's only PGA owned course, these epilepsy advocates will test their endurance in a show of solidarity for the endurance Minnesotans with epilepsy demonstrate every day.
Date
Starts at: August 29, 2022 6:00 AM
Ends at: August 29, 2022 9:00 PM
Location
TPC Twin Cities
11444 Tournament Players Parkway
Blaine,MN 55449 USA
Contact
Ellen Sexton
651-287-2316
esexton@efmn.org
Enduring through the challenges of epilepsy: Marcia Kautz
Marcia Kautz experienced her first seizure in 1988, kicking off a decades long journey to manage her seizures and find the support that would allow her to lead the life she wanted.
For years, Marcia and her husband Dean dealt with doctors who told them Marcia would "just have to live with" her seizures and the side effects of her medication. It wasn't until they learned about EFMN that they found an epileptologist who listened to them and cared about about Marcia's total wellbeing — not just her seizures.
“We finally found someone who cared about the side effects of my medication and wasn’t only focused on my seizure activity. It’s been great having someone who listens and cares about my quality of life."
Since that moment, Marcia and Dean have continued to turn EFMN for support when they need it. In 2020, when the financial assistance that enabled Marcia to afford her primary medication ended, EFMN's Information Services line helped her and Dean to receive full coverage through the manufacturer.
Marcia's journey isn't without its bumps, and she and Dean don't expect it ever will be. But they know they'll get through it together. "One of Marcia's greatest strengths is her ability to pick herself up when things are tough," says Dean.
How You Make a Difference
Your support empowers people with epilepsy to manage their seizures and lead the lives they want to lead.
Care
Whether educating people about treatment options, connecting them to transportation or employment services, or referring them to a care specialist, EFMN's Information Services team ensures people with epilepsy have the support they need to navigate life with seizures.
Support
Led by our Regional Outreach team, EFMN's programs for children and youth (Shining Stars, Camp Oz), social events, and peer connect groups reduce isolation, minimize stigma, and build networks of support that are vital to Managing Epilepsy Well.
Access
Working at the state and local level, EFMN is advocating to remove geographic, financial, and social barriers to care, improve access to vital public health services, and increase safety for people with epilepsy at work, in school, and in the community.