Parent to Parent Coffee Chat
About Parent to Parent Coffee Chat
Are you a parent navigating the challenges of caring for a child affected by GBS, CIDP, or MMN? This welcoming coffee chat offers a safe and supportive space to connect with other parents who truly understand your journey.
Who Should Attend: Parents or guardians of children affected by GBS, CIDP, MMN, or related condition.
Why Join: Share experiences, ask questions, and gain support from others who are walking a similar path. Whether you’re seeking advice, sharing insights, or simply looking for a listening ear, this chat is a chance to build meaningful connections with fellow parents.
Please Note: Seating is limited for this event. Once registration is full, additional sign-ups will not be available. If you register but are unable to attend, please contact the Foundation at events@gbs-cidp.org so we can offer your spot to someone on the waiting list.
We’re here to support you—looking forward to connecting with you!
About the Speaker
My name is Meg. I was 10 when I got sick with CIDP. It took 18 months to diagnose me, which left ten-year-old me wondering what I had and what was going to happen. After years of treatments, I went into remission at 15. CIDP flared up again when I entered college, and I had more IVIG treatments for another few years. Now, I'm 42 and, though I have some residual effects of CIDP, I have figured out how to live a mostly normal life and have been off treatment for 20 years. My passion in life is helping other patients, kids especially, know that they are not alone in this journey. Together, and with the Foundation's help, we figure it out and make the best of it. Maybe even having a little fun along the way, despite the CIDP in the room.