Charles Barkowski

Charles Barkowski

A little over 2 years ago, our oldest son (9 at the time) began to have some health issues that involved weight loss and loss of energy as well as some other things. We began to see doctors for tests and checkups and they were able to figure out after his colonoscopy that he had Crohn's disease. To help get the inflammation under control, his doctor had him try to go for about 6 weeks of just Nestle Modulen - no food. This helped him tremendously as he was able to start gaining weight again and his energy levels came back quickly.

Eventually, he had to start Remicade treatments to better address his Crohn's and he has been doing this for over one year now.

Last year, our oldest daughter (11 at the time) began experiencing some similar symptoms. She was also diagnosed with Crohn's and underwent a similar treatment regime. Recently, she also started having Remicade infusions to help treat it. Now, we have two kids that are doing it together.

Being parents with two kids dealing with Crohn's disease, we see first hand the kind of toll this disease takes on the body. Our kids have been total champions in dealing with it and all the tests that have come along with it. Our son has had more blood tests than I can remember and both kids have dealt with all the needles like true champions!

We know there is research and testing being done all the time to come up with better treatments and possibly even a cure for Crohn's. We would love to see this reach a point that would help our kids be able to walk away from this disease some day. This is why I decided to choose the Crohn's & Colitis Foundation as the recipient of this fundraiser.

 About Crohn’s disease and ulcerative colitis

Known collectively as inflammatory bowel diseases (IBD), Crohn’s disease and ulcerative colitis affects almost 1 in 100 people. They are painful, medically incurable diseases that attack the digestive system. Crohn's disease may attack anywhere along the digestive tract, while ulcerative colitis inflames only the large intestine (colon). Symptoms may include abdominal pain, persistent diarrhea, rectal bleeding, fever, and weight loss. Many patients require numerous hospitalizations and surgery. Most people develop the diseases between the ages of 15 and 35; however the incidence is increasing in children. 

 The Crohn's & Colitis Foundation is the largest non-profit, voluntary, health organization dedicated to finding cures for inflammatory bowel diseases (IBD). The Foundation’s mission is to cure Crohn's disease and ulcerative colitis, and to improve the quality of life of children and adults who are affected by these diseases. The Foundation works to fulfill its mission by funding research; providing educational resources for patients and their families, medical professionals, and the public; and furnishing supportive services for those afflicted with IBD. 

Charles Barkowski