Rock the FIGHT | Fight for a Better Life

Rock the FIGHT | Fight for a Better Life supporting Alagille Syndrome Alliance
Alagille Syndrome Alliance

About Rock the FIGHT | Fight for a Better Life

The ALGSA's Fight For A Better Life event is the Alagille Syndrome Alliance's largest annual fundraising campaign, and this year is schweet! 

The 'Fight' is a virtual, team-based event held September 1st to October 15th of each year. During this time, ALGSA stakeholders including ALGS families and friends, create teams or individual fundraisers with financial goals in mind. This is done in support of reaching the ALGSA's overall fund-raising goal. Each team or individual fundraiser will reach their goals by having their own in-person events or online fundraising initiatives. In the past, teams have held pop can drives, shoe drives, restaurant fundraisers, auctions, yard sales, and online fundraisers. Some new ideas for this year's Rock the FIGHT them - dance parties, Rubik's Cube or Super Mario tournament, roller derby event or online 80s Trivia Night! No lame ideas here!

This campaign funds ALGS programs and the development of opportunities for ALGS families around the world. Programs include the financial assistance program, educational resources, disease awareness, travel scholarships and event participation. Opportunities include connecting families to scientific and research projects, outlets to share their rare disease story, initiatives where they can inject their patient voice, and events they can participate in or even lead. 

Create a team or individual fundraiser today. Unite together with ALGS families, friends, and Alliance supporters from around the world to reach our FIGHT goal! Make a big difference in the lives of those living and dealing with Alagille Syndrome. Let's Rock the FIGHT together! 


Starts at:  September 1, 2021 12:00 AM
Ends at:  October 15, 2021 11:59 PM




Cher Bork

FIGHT for a Better Life: Why participate?

Choosing to participate in the ALGSA's Fight For A Better Life Campaign is a commitment to positively impact the families living and dealing with Alagille Syndrome. The primary purpose of this event is to fund ALGSA programs in science and research, the ALGSA family financial assistance program, the Symposia and Scientific Meetings on ALGS, educational programs, and many more meaningful programs and opportunities rare Alagille families all over the world need and deserve. Rock the FIGHT with us today!

FIGHT for a Better Life: Get Involved!

What is the FIGHT for a Better Life campaign all about and how do you get involved? Teams, individuals or families join the ALGSA's largest annual fundraising campaign September 1 - October 15. Let's Rock the FIGHT!

Team Spotlight: Jake's Annual Can Drive

In 2010 we were fortunate enough to be able to attend the ALGS Symposium in Chicago. The outpouring of support and knowledge we received there was incredible and we will never forget it. Since then I felt the need to pay it forward and that's what inspired us to start the "Jake's Annual Can Drive." Thanks to our family, friends and local community we just finished our 11th year with the can drive with a total of raising around $13,800.
Our Jake was diagnosed with Alagille Syndrome when he was 2 months old. He received a liver transplant in March of 2013. He is currently doing very well. He is starting 7th grade. He is very athletic and loves to play all sports. He is a member of 4-H and raises hogs for one of his 4-H projects. He has a 2 year old yellow lab named June which he loves to play with.
We still have a strong connection to the ALGS families thanks to social media. We do read your face book post and understand/ share in all your triumphs and struggles with ALGS. Stay Strong and Press On!!
I want to Thank all the Board members for their continued efforts with raising awareness, educating and improving the lives of those with ALGS. It does not go unnoticed!!
Bonnie Feise